I now know what socks feel like in the washing machine.
I am stuck on a fast spin cycle that’s no close to ending any time soon.
When you picture your life and the ups and downs you might face, never in a million years do you ever envisage yourself going through and coping with something like this.
It’s actually incomprehensible.
Just take a minute, imagine being one of the 1 in 3. Then imagine it being the person that you love, that you planned to spend the rest of your life with, the person that saved you.
Imagine watching them and knowing that they are in constant pain but pretending to the world it’s not that bad and there’s fuck all you can do to help.
I’m still waiting for someone to tell me they’ve got it wrong, actually this is all a big mistake, go back to your regular, boring, run of the mills lives. Make plans, go on holiday, live your lives and forget about all of this.
It’s a fleeting daydream I don’t dwell on. No one is going to tell me it’s all going to be ok, they can’t.
Just imagine for a minute, don’t think about it too long because it will physically make your heart hurt.
The past month Mr C has had what feels like 100s of appointments with different doctors, specialists at different hospitals who will treat him this next year. This week will hit an all-time high.
Today he had a kidney test and blood tests, he hates needles, tomorrow the GP, Thursday he is having his central line fitted, Friday lumbar puncture in the morning and heart test in the afternoon. They’re getting prepared for his chemo which starts next Tuesday.
Not knowing what is to come is difficult and worrying and all the other words associated when you begin to think about how tough this year will be. In all honesty I’m trying not to think too far ahead. If I break down what’s to come in bite size manageable chunks I might be able to well, not break down.
Things we do know are getting easier to say out loud, facts are much easier than feelings.
We do know that he has a cancer called Ewings sarcoma. It’s a rare bone cancer. There no more than 75 cases each year in the UK. He doesn’t do things by halves.
Not only is it rare, he’s an unusual case. The tumour is not in the area of bone Ewings is usually found, it’s usually found in adolescents (this does make this particular cancer any easier to treat) gout is not usually presented with it (turns out he has gout caused by the waste cells from the tumour.) It’s so unusual that they did a secondary biopsy to confirm the diagnosis as at one point they thought it could be Lymphoma. It was more likely for him to win the lottery than for him to get this type of cancer.
We know that there are no tumours in his lungs, the first place it would travel and up to now there are no other bone tumours anywhere else.
There is a treatment plan, although due to the rarity of everything, the plan will need to be discussed nationally at the Ewings treatment board thingy.
Mr C will have 14 lots of chemo every 3 weeks. He will go to Christies for 3 days/2 nights each time. Half way through the treatment he will have his leg amputated, more than likely above the knee and then the chemo will start again.
Facts not feelings, facts not feelings, facts not feelings.
We know about foods he can’t eat, what he has to do if he’s feeling feverish or like he’s getting a cold as his body won’t be able to fight infections.
We know his hair will fall out and we have been warned about the other side effects of treatment.
We know we will have to make the most out of well days.
There are dark days ahead. Within those days a certain degree of normality will have to remain for me and the kiddies. I will need to go to work even though every part of my fibre screams to be at home where I can deal with things in our little bubble. The kids will need to go to school and nursery, they will need to be children, they will need to have fun.
That’s what we know.
Everything else is unknown, unexperienced.
15 thoughts on “When Facts are Easier than Feelings”
Omg huni I am so sorry to hear this news. I know there really is by much I can say but I’m here (virtually) if you need a chat. Sending huge hugs and prayers for you all xx
I just can’t say it enough – but if there’s anything you need… I think you’re all incredible, lots of love xxx
💙 thinking of you all.
I want to leave comment here but don’t know what to say other than you’re all in my thoughts. As my mum was found of saying during her battle, life isn’t about waiting for the storm to pass, it’s about learning to dance in the rain. X
Oh my goodness Becky I’m so sorry to hear this news. Sending love and lots of positive thoughts xxx
Sorry to hear about your husband – sending lots of love to you all. Christies are amazing and the treatment he will receive is second to none. I will be forever indebted to them for helping my mum. Keep fighting love xxx
I’m so so sorry you’re going through this, it is absolute shite in the worst way possible. I really really pray it’s all curable and he’s back fit and fighting in no time. My friend is going through breast cancer and it’s so hard to sit by and watch and keep asking “are you ok?”. I hope you all really are ok cx
I am so sad to read this. I am so sorry that you are in this horrible spin cycle.
You are so right, facts are far easier to say out loud and to deal with.
Sending you lots of love and strength for the coming weeks and months. XxxX
Hope we can all be here to support you Becky, it is a scary time but treatments can do amazing things, love & strength to you all. x
Oh my lovely I am so so sorry to hear this news, I truly hope that the treatment can work and I really hope that we can follow your journey through to a positive remission xx
Thinking about you loads at the minute. The Christie is an amazingly good hospital. Sending love and strength xx
I’m so sorry to read this. I can totally see that facts are easier than feelings right now. I hope you are both able to be strong through what is to come x
I’m so so sorry to hear this. I know you’ll find more strength than you think. Each hour, day at a time and start again the next day. I hope all the treatment goes smoothly and works as soon as can do. Thinking about you all. Take care bec xx
I am so sorry, I hope you have all the support you need around you and will be thinking of you. I hope the treatment has a positive effect quite quickly x
Oh Becky. I’m gobsmacked reading this. It is an unbelievable amount to take on board. You are right in living in the moment as much as you can. Don’t let your thoughts run away and try not to think of the year ahead. Small steps. This is a brutal blow for your lovely, little family, but you’ll find reserves of strength you didn’t know you had. And your kids will brighten those dark days. I hope you have lots of support. If there’s anything I can do please shout. Lots of love xx